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ea0070aep552 | General Endocrinology | ECE2020

The extent of variation in the reporting of clinical activity by reference centres in the field of rare pituitary and thyroid disorders within Endo-ERN, a new reference network for rare endocrine conditions in Europe

de Vries Friso , Bruin Mees , Cersosimo Angelica , Ahmed Faisal , Peeters Robin , Biermasz Nienke , Hiort Olaf , Pereira Alberto

Objective: Self-reported volume of patients and specific interventions is a specific network criterion that needs to be fulfilled by reference centres that are eligible for inclusion within Endo-ERN. The aim of the present study is to evaluate how self-reported volume data in the original applications were obtained, which data are retrievable, and which set is best suitable to use for future centre evaluations. This overview is provided for two Main Thematic Groups (MTGs) of E...

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Endocrine Abstracts

The extent of variation in the reporting of clinical activity by reference centres in the field of rare pituitary and thyroid disorders within Endo-ERN, a new reference network for rare endocrine conditions in Europe

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